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What if I'm not sure if I have dystonia?

Updated: Nov 26, 2021

If you suffer from recurrent spasms in the body, nerve pain such as trigeminal neuralgia or pudendal neuralgia, TMJ disorder, or are stuck in an unnatural posture, there's a good chance you can benefit from neurological recovery coaching. We can discuss on a free call.

You might not have been diagnosed with dystonia, but you have a feeling you can benefit from neurological recovery coaching? Please read on!

Dystonia is, unfortunately, an often misunderstood and misdiagnosed disorder. Rather than a disease, it is really just a symptom: uneven muscle tone throughout the body. Because of physical or psychological trauma, repetitive habits, or anatomical anomalies, the brain circumvents certain parts of the nervous system, and overuses others instead. This results in spasms, unnatural postures, repetitive movements and tics, and a slew of other debilitating symptoms.

In my experience, however, most people who suffer from it are not familiar with the concept and haven't been diagnosed with it.

Take my case, for instance: I suffered from malocclusion (an open bite) and avoided chewing on the left side where the teeth did not touch. In time, my brain slowly "forgot" the unused side and start spasming on the overused one. The asymmetrical muscle tone in the face and neck caused a chain of consequences all the way down to my feet. I was diagnosed with facial pain, scoliosis and herniated discs, and a number of other conditions, but no-one came up with the word "dystonia". When I finally understood what was happening, neurologists had nothing to offer but risky injections of Botulinum toxin to try and release the spasms in my neck. Thankfully, I discovered how to balance my own nervous system instead of further damaging it - but that's for a future post!

As another example, Galit suffered physical and psychological trauma during childbirth, and found herself progressively less able to use the bathroom. She was losing control of the muscles in her pelvic floor, and couldn't really feel the urge to use the bathroom either. She was diagnosed with pudendal neuralgia, and given no options to recover function. She had never heard the word dystonia despite the clear lack of muscle tone in the left side of her pelvic floor and the strong spasms on the right, and no-one offered explanations or solutions for her autonomic bowel dysfunction (the trouble her digestive system had moving bowels down).

After fifteen hours of work together and lots of independent work at home, Galit has completely recovered her ability to use the bathroom and regained symmetrical control of the muscles of her sphincter. She helped her body awaken the nerves that she had not been using since the trauma occurred, stimulated her parasympathetic (rest-and-digest) autonomic nervous system, and used neuroplasticity techniques to integrate new patterns into her body's daily function.

Last but not least: Dimitri's maxilla (his upper arch of teeth) is deviated towards the right, which forces his mandible to twist in a dysfunctional spasm in order to create contacts between his teeth. This, together with a series of iatrogenic (doctor-induced) injuries, created a severe imbalance in Dimitri's cranial nerves, which resulted in a downard chain of spasms and distortions. He was diagnosed with temporomandibular joint (TMJ) disorder, disc herniations, trigeminal neuralgia and several other conditions - but no-one had shed light on the fact that Dimitri's anatomy was forcing a series of dysfunctional spasms and compensations throughout the body. Most evident among them - his difficulty to emote, as he had lost a great degree of control over his facial expression muscles.

Dimitri worked to awaken his fifth and seventh cranial nerves, among others, and on his first session already he smiled, laughed and cried (with joy). After two months of work together, his TMJs are much more balanced and he is able to chew and speak more freely; he is now working with an ALF dentist we identified together to correct the distortion of his maxilla.

Bottom line: neurological recovery coaching can help you get the tools you need to improve the functioning of your nervous system, whether or not you have been diagnosed with dystonia. Most people, in fact, never hear that word unless they suffer from visible symptoms like torticollis. If you're curious about whether this method could help you, head to the home page and book a free thirty-minute consultation. I'd be happy to chat.

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